The Nigerian Comprehensive Sickle Cell Newborn Screening and Follow up Initiative Partners is a constituted, common interest group of Diaspora Africans. The mission is to strive towards improving the management of those affected by SCD globally and especially in Africa, through health promotion, community empowerment, implementation of patient centered evidence-based health care practice and research. These shall be achieved by designing and implementing user-focused and country-specific sustainable skill-transfer intervention initiatives, facilitated by securing the funding from the country in need of services and other reputable sources. This work is being carried out as a consortium including Diaspora groups and institutions in the USA. The Nigerian Comprehensive Sickle Cell Newborn Screening and Follow up Initiative Partners is represented by GLOSCA in all SCD related activities. The Global Sickle Cell Alliance, Inc (GLOSCA) is a non-profit organization pursuant to IRS 501 (c) (3) with a mission to improve the quality of life for all affected by, or at risk for, sickle cell disease and trait and related disorders through international partnership. GLOSCA is a mostly volunteer organization with consulting experts and has no financial capabilities to support any programme activities.
Mustard Seed Health Awareness Initiative (MSHAI), Ile-Ife, Osun State, established as Mustard Seed Support Network in 2008, became a registered NGO with Corporate Affairs Commission (CAC) on 19th November 2013. It is a non-governmental, non-political, non-profit making, charity organization of multidisciplinary health care professionals that provides palliative care (care and support) to people living with chronic illnesses such immunodeficiency conditions such as HIV/AIDS and tuberculosis, sickle cell disease (SCD) and cancer.
To make life worth living despite chronic ill-health and disability due to immune deficiency states, sickle cell disease or cancer by improving the quality of life of the affected, thus building a healthier community.
To provide palliative care (care and support) services to people living with chronic diseases and their families from diagnosis through death and bereavement.
To improve the quality of life of people living with chronic diseases through preventive strategies, early detection, assessment and prompt treatment of pain and other physical, psychosocial and spiritual challenges.
1. Facilitate easy access to palliative care services (care and support) through capacity building of members and health care providers in the community;
2. Strengthen linkages with Primary Health Care (PHC) and Supporting Services;
3. Provide home-based care (HBC);
4. Empower people living with chronic illnesses through the establishment of viable and sustainable support groups and clubs;
5. Network with other agencies to provide income generating activities that would help alleviate poverty from among sufferers; and
6. Sensitize and increase the awareness of the community in matters concerning chronic illnesses thus reducing stigmatization and discrimination, while promoting quality of life strategies.